This week I had good news after my yearly bladder cystoscope. I am all clear of tumours. Then the bad news is because I have on going problems they want to do a bladder function test, which I have on the 24th. My problem is that Parkinson’s can also have an effect on the bladder functions. PD has been showing me this week it’s evil side and how despite my efforts to fight Mr P he is going to invade my life even more.

I have been having a clear out this weekend mainly the loft. Mr P had other ideas! Messing with my balance, strength, fatigue, thinking, and generally slowing me down. I have been trying to ignore it and carry on but it’s been hard. It been harder than ever before. I will not be beaten and despite waking this morning with cramps, stiff muscles all over I am going to carry on. I will not yet let it win. Trouble is I feel a new worsening of the affects of the PD which shows it’s progressive nature.

On a funnier note my memory is so bad I’ll most likely forget all the above by tomorrow. Another effect of PD with Lewy body.

I am staying positive and letting the light of positivity wash over me. There’s always something funny or happy in every moment of the day. I find that inner light to shine out no matter what. My next blog I’ll explore the skills needed to find peace and light to overcome Mr P.

Have you ever gone to a room then wondered why? It’s gone completely out of your mind. This is me all the time. Trying to put the milk in the fridge, I find I’m just about to put it in the bin instead. I do laugh at myself in those instance. The problem comes when it affects things that are important like work or something I’ve been asked to do. How many times have I forgotten to pick up milk on the way home!! I was told by my neurologist that there is a drug I can try that will help. Sounds easy but because I’m under the memory clinic my doctors won’t prescribe it until I’ve seen the memory specialist! So at the moment I’m stuck in a paradox of NHS protocols. Even just to see a GP these days is like finding gold walking in the street. Even if I’m lucky to get an appointment it’s rarely with the same doctor. So there’s no continuity and it’s the explaining everything all over again!

The NHS is in crisis and post Brexit is said to be in danger of collapse due to staffing and drug supplies. Maybe we need a fundamental re-think of the funding and how much we contribute to this great health system we have.

In the mean time I wait to see the memory specialist. Just have to make sure I don’t forget the appointment!!!