Memory

Apps that make life easier with PD and Memory

Many of us with Parkinsons, the executive functions of our brain do not work very well. The ability to remember things or plan are greatly reduced. Simple things such as remembering to take medications or appointments can be a challenge. Birthdays anniversaries can no longer be left to our memories. What we need is an aid which can do all this work for us. There are several things we can do:-

Traditional methods, Paper Calendar, Paper notices, shopping list, to do lists, etc

Other memory aides are, Sticky notes, Fixed notes for regular reminders, Medication boxes, Colour coding such as keys draws etc.

 Electronic aides such as, Mobile phones, tablets, computers. To these can be added apps such as, To do apps, Calendars, Timers, Medication managers, Birthday reminders, Car finders, Contacts list.


It is individual which method suites each individual. I prefer the electronic methods as everything can be on my phone and with me all the time.

I have spent many an hour testing out several apps for their suitability for me. I think now I have settled on what I consider the best for anyone with PD that needs a little assistance with memory and information handling. I thought I would share these with you and leave you to try these apps for yourselves.

The following are the apps I have adopted after trying many alternatives

At number one is Wunderlist This is a versatile organiser app that can be used to organise or store information in any way you choose to configure it. Lists tasks can be shared with others and a reminder can be made to appear in your calendar.

This is one of the only free organiser that comes with sub tasks and notes to each task. It is easy to use and can be installed on all your devices with versions for iOS, Android, Windows. Wunderlist was acquired by Microsoft and they have now released an organiser app called Microsoft To-Do This is almost identical to Wunderlist but has a fresher style.

Number two is Meditisafe This is a medical app that stores all your medications and quantities, it reminds you to take your medication as well as when you need to put in a prescription. It has a diary for doctors hospital appointments. A measurements section for blood pressure, weight, etc. once setup this app is really useful and the best in class. It is also cross platform.

At number three is B’day This is a stand alone birthdays app that will remind you of those birthdays you need to remember. Its drawback is that it is only available on iOS Apple. For Android I would recommend aCalendar This is a calendar with birthday reminder built in.

At number 4 is Asana This is a project/task management system that can track actions, give reminders and generally track a project from start to finish. The good thing is the basic version is free. At number 5 is Mindly This is great! If you are full of ideas or planning an event or just wont order in your life Mindly will do it. It is very different to all other organisers but once you get into it you will wonder how you managed without it.

A couple of years ago I noticed after exerting myself or lifting heavy items my left arm felt strange.  It was weak and jelly like.  I kept noticing it but dismissing it.  After a year of the odd feelings in my arm and hand I decided to mention it to my doctor.  He thought I had a pinched nerve in my neck so put my name down for some physiotherapy.  Four sessions later with William the physio it had made no difference.  Now I was noticing I was having difficulty holding and using a fork. I still ignored it and put it to the back of my mind.

The next odd thing that started happening was my balance was getting worse.  A couple of years before I had investigations for vestibular problems which caused me balance issues.  Now this was returning with vengeance.  I was finding it difficult to walk or do anything without feeling dizzy or falling about.  The other thing I noticed was I was having difficulty going to the toilet.  I would be 10-15 minutes on the toilet just going for a wee.  I had bad constipation as well.  At this point I started to Google all these things.  Every search the word Parkinson’s would be in the results.  Off to the doctors I went mentioned all these things I was experiencing but true to the GP tradition he started to treat me for each individual thing.  I had my prostrate checked and that was OK.  I reframe from dropping in the idea that I could have Parkinson’s as the doctor might dismiss me as a crazy Googler.

Life went on with Vestibular exercises, constipation sachet and trying to put all the symptoms out of my mind.

My balance was get worse despite me using all the techniques I had been taught by the hospital.  I then started to feel really tired all the time. My sleep was getting bad, waking up all the time  I started to go into quite a depression, to an all time low.  Back to the doctor. I was then prescribed antidepressants. After about a month we realised I needed a higher dose. Again Googling all this, it again through out Parkinson’s.

I started to notice that I felt weak muscle wise.  Occasionally I would shake doing something using all my strength.  Then one evening I was watching TV and it was one of those emotional dramas.  I noticed my right hand started to shake. i then started to notice this in times of stress or emotion.

Off to the doctor again. this time I thought with a slight tremor and all the other symptoms he would put it all together and refer me. This time he made me walk up and down his room and actually said he did not think it was Parkinson’s. He then gave me a blood test form for a full blood check. About a week later I had a call from the surgery to go in and discuss my blood test

Off to the doctor again. Sat down and was told my blood sugar was elevated into the area where I was labelled type 2 diabetic.  Not what I wanted to here.  He told me I had to see the diabetic nurse for advice.  To the front desk I went and made an appointment to see the nurse.

Off to see the nurse.She gave me leaflets on type 2 diabetes and told me she would book me into what is called a Desmond day.  This is a whole day with two nurses who educate all about type 2.  The whole time of going to these appointments and Desmond days my balance was really bad my right hand had a tremor and I still had not got it sorted out.

By this time it was the beginning of June and I had started back in January determined to sort it out.  I logged on to the doctors site and decided to make an appointment with my own doctor.  There was a nice and early appointment te following week.

Off to see the doctor again. This time my own doctor.  I was quite stressed and my tremor was quite easy to see.  By this time, I had noticed I was having difficulty walking the dog and getting in and out of chairs.  So armed with this information I went into see her.  She listened and then examined me.  She ended up saying “um, there is definitely something going on, I’d like you to see a neurologist”.  So do I, I thought.  Having private insurance with my company I asked he for an open referral letter. This was ready a couple of days later.

A week later I had an appointment with a neurologist at a private hospital in Winchester. My wife came with me for support. The stress of the situation made my anxiety and tremor bad. It was after just a few tests and listening to my story,  he said I had Parkinson’s. From that point I felt I had something to work with.  How I coped  and put together my life again I will bring to you in part two.

 

 

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